Parent Carer Council
Parent Carer Cornwall are an independent organisation run by parent carers of children who have additional needs/disabilities. They support the age ranges of 0 – 25 years.
The PCC can assist with enabling families and other organisations by:
- Finding information that can support them
- Enabling families to network with each other through activities, events and training
- Assisting with the development of services, so they are the best they can be for families.
- Supporting schools and pre-schools with signposting to organisations that families who have children with SEND may find useful.
- Producing a newsletter with up to date information that is shared with many professionals.
- Offering training to parents and professionals
- Very importantly providing a united forum enabling parent carers to not only have a voice, but for that voice to be heard, through parent carer participation whether directly in meetings or via feedback through surveys.
The PCC was formerly known as Parent Carer Council for Cornwall. It changed its name to differentiate that they work in co production with Cornwall Council but as an independent organisation.
If you would like to know more about them, receive their leaflets, or their guide to services in Cornwall, then please contact them via this website, which is very user friendly. Contact can also be made by email to firstname.lastname@example.org or 07973 763332
Not sure what to do when your child is unwell?
The HANDi Paediatric app gives up-to-date advice about common childhood illnesses and how to treat them. It’s now available to download for free onto any Apple or Android smartphone or tablet. The app has been designed as a way to reduce the number of children and young people who visit A&E, but need no treatment. It has been developed by paediatric consultants and will give you access to home care plans, as well as GP and hospital clinical guidelines, for the most common childhood health care concerns.
The app contains information about when and how to ask for help, along with what to expect when your child is being assessed. Parents generally don’t want to take your children to A&E unless it’s absolutely necessary – but often parents end up there because they are not sure what else to do. It is hoped this app will give parents more confidence in dealing with the more minor conditions at home.
Information on areas covered, and links to download the apps.
Have a go day 2019
DOES YOUR CHILD HAVE A DISABILITY? DO YOU HAVE FRIENDS WITH CHILDREN WITH A DISABILITY?
Once again, Cornwall Council is putting on a Have a go day, which is a day for children to ‘have a go’ at activities they might generally not have the opportunity to enjoy. This year’s event is at Cornwall College, Trevenson Road, Pool, TR14 3rd on Friday 31st May from 10am-12pm.
If you would like your child to participate in this event, please contact Katie Pratt (katie@Disabilitycornwall.org.uk)
Mental health awareness week 2019
Monday 13th May – Sunday 19th May
Mental Health awareness week is hosted by the Mental Health Foundation, The theme for 2019 is Body Image – how we think and feel about our bodies.
As part of Mental Health Awareness Week:
- MHF will be publishing the results of a UK-wide survey on body image and mental health.
- MHF will look at body image issues across a lifetime – including how it affects children and young people, adults and people in later life.
- MHF will also highlight how people can experience body image issues differently, including people of different ages, genders, ethnicities and sexualities.
- MHF will publish practical tools to help improve the nation’s relationship with their bodies.
For more information, please visit their website
Child and adolescent mental health services Cornwall
How to avoid infection
Days out at farms are an enjoyable and educational experience for many people. However, animals can carry a number of infections that may be harmful to people, especially children and pregnant women.
Public Health England would like to take this opportunity to remind families who are visiting farms, how to avoid infections. Below are links to some useful information documents which might be helpful if planning family farm days out.
Leave No one behind: Down’s Syndrome Awareness Week 2019
It’s Down’s Syndrome Awareness Week and we know many schools are taking part in the Lots of Socks campaign on 21 March to help raise awareness of what Down syndrome is, what it means to have Down syndrome, and how people with Down syndrome play a vital role in our lives and communities.
Here in St John’s, children (and staff) are invited to wear odd or fancy socks on Thursday 21st March. All children are also invited to enter the design a sock competition. Closing date is Friday 22nd March, when all entries will be judged. Winners in each class will be announced on Monday 25th March during Celebration assembly.
For families affected by Down’s syndrome living in Cornwall, the Cornwall Down’s Syndrome Support Group has a whole host of resources and further information.
Landscapes of the Mind: FREE inclusivity Concert
Cornwall Youth Orchestra will present another FREE Inclusivity Concert on Thursday 11 April in Truro Cathedral at 1pm. Presented specifically for people who would not normally have the opportunity to hear live orchestral music, the concert is tailored to be autism, dementia and special needs friendly along with carers and family members.
Holiday support: Easter 2019
Disability Cornwall are running FREE activities for children with additional needs or disability during the Easter holidays. For more information please contact disAbility Cornwall:
Have a Go Days 9 and 16 April 2019 (information leaflet)
Easter Holiday Support 2019 (link to disAbility Cornwall website)
01736 759500 (phone)
Parenting Courses 2019
Please read details of the Parenting Programmes locally. Parents are invited to attend any of these courses by booking through the Family Information Service on the booking form provided and send through to the Early Help Hub.
Family Support Services weblink
FREE SUPPORT for parents, carers and families in Hayle, St Ives and Penzance
Locality 1 FREE COURSES for parents Spring summer 2019 v1
FREE SUPPORT for parents, carers and families in Camborne, Redruth, Treloweth, Lizard Peninsula, Helston
Locality 2 FREE COURSES for parents Spring 2019
Grants for Disabled children
Finding enough money to pay for essentials with any child is an uphill struggle. But when you have a child with extra needs the demands are even greater. Toys, bikes and even holidays are more expensive.
Because everything with a disability or special needs label has an extra cost!
And trying to earn more with a caring responsibility, between juggling appointments and SEN reviews with the normal hassles of everyday life, is a tough ask.
In the UK we are fortunate that many charities and trusts provide grants for disabled children. Whether they have a learning, physical, emotional, or other life-limiting condition.
The charities work hard to raise the funds so they can give grants to those in need. Each charity is independent and has its own criteria for giving grants. This includes who it will fund, what it will fund and how much it can fund.
A grant is a financial donation or contribution. Unlike loans they don’t need to be repaid and the money you receive is not taxable.
Who can apply?
Some charities are happy for individuals or family members to apply direct.
Other charities may prefer an application from a third party. This may be a medical professional or social worker who knows the child.
The charity may ask for a report from a qualified professional to support your application. This is to make sure that the need is genuine and beneficial to the child.
A qualified professional may be a health professional, social worker, family support worker, or headteacher.
The charity may ask for the report to be included on your application form. Or it may just ask for the professional’s contact details so it can contact them direct.
Can I apply to more than one charity?
Yes, you can!
When you make an application, let the charity know if you are applying to other charities, as sometimes charities will negotiate between themselves and agree to joint funding.
The only exception is the ‘Dreams and Wishes’ charities. Only one application per child as these are often high cost items.
What information will they need?
All charities will need:
· The name of the beneficiary
· The beneficiary’s contact details
· Information about the child’s disability or special needs
· What the child needs and why they need it
Increasingly more charities are asking for financial information. This may include the parents’ income, household bills and loans.
This is not to question how you spend your money, but an attempt to give their money to those in the most need. Fundraising is becoming harder for charities and funds are limited, so choices have to be made.
What can you apply for?
Each charity will list its priorities for funding depending on its interests. One may fund disability equipment while others will fund anything that improves quality of life. As children’s needs change and new technology emerges charities are open to suggestions.
Give the reasons why the item for which you need the grant will help and the difference it will make to your child.
It also helps to include a picture of the item and a quotation to support your application.
How much will the charities fund?
This varies between charities and what you are applying for.
Larger charities may be able to fully fund an item and sometimes pay for the upkeep/servicing.
The majority of charities will make a contribution and expect the applicant to pay for part of the item themselves. This could be either from the child’s Disability Living Allowance or from personal fund raising.
How long does it take?
Each charity operates within its own time frame.
Smaller charities can turn round grant applications more quickly and they may accept applications throughout the year, while larger charities may meet two or three times a year and are more likely to set a deadline for applications.
This information can be found on the charity’s website or its application guidance notes.
What is match funding?
Match funding is when the charity asks the family to match the donation from the charity.
The charity will offer to pay an agreed amount after the family can show that they have found the remaining funds. This is often used when large sums are required, such as for a surgical operation in the USA.
If you feel this might help you and your family, use the link below:
34% of children are leaving primary school overweight. As a positive response to this, Change4Life has launched a newcampaign, “make a swap when you next shop”, encouraging families to cut back on sugar. Please follow this link to theChange4Life website for some fun ways to implement small changes to maintain the health and well being of your families.
Mental Health Awareness week: 4th – 10th February 2019
This year’s theme is Healthy: Inside and Out – the children’s mental health charity Place2Be is encouraging everyone to think about how they look after their bodies and minds.Here are some resources you or your child might benefit from.
Tips for Children Tips for Parents and Carers
As always, please see Mrs Lobban (SENCo) or your class teacher if you have concerns regarding the emotional health of your children.
Autism Spectrum Disorder Assessment Team (ASDAT)
The Autism Spectrum Disorder Assessment Team at the Cornwall Foundation Trust will be running evening information sessions. These will run from January 2019 until May 2019 and are for parents and carers to tell you more about the ASDAT Team, the assessment process and what help is available while waiting for an assessment.
The first session is Wednesday 16 January at 1pm at St Stephen’s Children’s Centre, Roydon Road, Launceston.
Please see their flyer on the Cornwall SEND Local Offer Website for more information, how to book onto a session and more dates/venues/times.
Epipens: advice December 2018
If your child has an epipen, please use the link below to read current advice. Please be aware that there is currently a shortage of Epipen and Epipen Junior.
Parents epipen shortage letter
Resolving sleep issues and insomnia
The staff at Hunrosa, a sleep consultancy based in Cornwall, are experts in resolving sleep issues and insomnia at any age. Sleep is crucial for emotional, mental and physical health and academic performance. They provide accredited Sleep Wise workshops including parent sessions. They can also deliver individual sleep assessments.
They are trained by the NHS and are members of the British Sleep Society. Please visit the Hunrosa Website for more information.
Infection control and winter readiness 2018/19
Public Health has provided guidance ahead of the approaching norovirus season, to ask for your help this winter, to reduce the spread of norovirus.
We are writing ahead of the approaching norovirus season, to ask for your help this winter, to reduce the spread of norovirus. We hope the following points help to minimise the risk of outbreaks. We are also writing to GPs, district nurses, pharmacists, nurseries and childcare establishments and others.
Norovirus causes viral gastroenteritis, which is characterised by the sudden onset of vomiting and/or diarrhoea, it can spread rapidly in closed environments such as schools, childcare settings, hospitals and nursing homes. However, most people do not require treatment and recover at home within one or two days.
Norovirus is easily transmitted from person to person and by consuming contaminated food or water or by contact with contaminated surfaces or objects. Soap and water should be readily available.
If someone develops symptoms of norovirus, please help avoid spread by following this advice.
Children and staff with symptoms of norovirus should:
- Stay away from work or school until they have been free of symptoms for at least 48 hours and avoid contact with others where possible.
- Keep hydrated by drinking fluids as tolerated
- If symptoms persist (more than 48 hours), phone the GP or the NHS non-emergency number 111 for advice.
- Encourage staff and students to wash hands thoroughly with soap and water regularly but particularly after toilet visits and before eating and handling food. Alcohol hand gel is not effective against norovirus
- Do not visit friends or relatives in hospital or residential care homes as there is a real risk of introducing the infection to the establishment
- Do not handle or prepare food for other people until symptom free for at least 48 hours.
- Exclude ill children and staff from school trips and residential trips, consider postponing during an outbreak.
Please read the useful; leaflet using the link below for more information:
Stop Norovirus spreading this winter
Supporting children with social and emotional difficulties – self-harming
mental health in children is significantly on the increase. If you are aware of anyone who is suffering to the point of self-harm, here are some useful sites that can offer support and advice.
A guide for parents and carers
Health talk (leaflet)
World Sight Day: 11th October
This year, World Sight Day is drawing attention to eye care issues so that everyone, everywhere has access to good eye health. There are a wide range of visual impairments from severe sight impairment (blind) to sight impairment (partially sighted).
As the implications of vision loss are different for everyone, a wide range of strategies may be needed to enable our young people to have equal access to the educational and broader curriculum.
Parenting support meeting
The next Better Together parenting session will be held on Tuesday 11 September at Ladock Community Hall. The session with cover courses that are available, networking opportunities, the fact and fiction about parenting courses and top tips.
For more information click this link
Family Learning Drop in
All familes are warmly invited to a Family drop in session in Hayle at the Hayle Family Hub on Thursday 14th June 3.30 – 4.30. Families, carers and children welcome. For more details, please:
Phone: 07968 992495 or 01736 759058.
Please click on the link below for more details
Family Learning poster Hayle June 2018
Action For Children’s TALK
Sarah Brown is a part of Action For Children’s TALK. This is 3 month pilot doing an online chat service, where parents/carers with children under 5 years, can access advice and support from qualified experienced practitioners with any issues they are facing such as behaviour, weaning, budgeting, teething etc.
If you feel this service would be of benefit to you and your family/children please use this number to phone:
or for more information visit this website:
Talk leaflet This leaflet provides information that might be of help.
We are writing to inform you of a recent national increase in notifications of scarlet fever to Public Health England, above seasonal expected levels. We would like to take this opportunity to remind you of the signs and symptoms. In the case of a suspected outbreak, please:
- Contact your Health Protection Team on 0300 303 8162 for advice
- Your Health Protection Team will provide you with a letter to cascade to staff and parents if appropriate
Although scarlet fever is usually a mild illness, patients can develop complications and if you have any concerns please contact your local Health Protection Team for advice.
Signs and symptoms of scarlet fever
Scarlet fever is a common childhood infection caused by Streptococcus pyogenes, or group A streptococcus (GAS). The early symptoms of scarlet fever include sore throat, headache, fever, nausea and vomiting. After 12 to 48 hours the characteristic red, pinhead rash develops, typically first appearing on the chest and stomach, then rapidly spreading to other parts of the body, and giving the skin a sandpaper-like texture. The scarlet rash may be harder to spot on the skin of some Black and Asian people, although the ‘sandpaper’ feel should be present. Patients typically have flushed cheeks and pallor around the mouth. This may be accompanied by a ‘strawberry tongue’. As the child improves peeling of the skin can occur.
Scarlet Fever: FAQ
NHS – Scarlet Fever
images of scarlet fever
Children’s Mental Health Week: 5 – 11 February 2018
It’s Children’s Mental Health Week – Cornwall have produced a newsletter with lots of information to support this which includes:
- Place2Be free resources
- Headstart Kernow update
- Resilience Boss animated film created by Headstart Kernow
- Headstart Learning Evidence Report 1
- Mind Your Way – the new mental health website for young people in Cornwall
- Mental Health conference
- The government’s mental health green paper consultation
- Your Way Services mental wellbeing case study
special mental health edition of the Raising Aspiration and Achievement newsletter
Information also available on the Children’s mental health website
There is a new parenting programme to support parents and carers in our local area. This includes FREE courses and support. Details below:
The next Passionate about Parenting Workshop being held at the Camborne Children’s Centre will run Monday 5 March. This is aimed specifically at EYFS parents and new parents, however it will support all parents, particularly if you are experiencing new difficulties coping with children’s behaviours. Please use the link below to find out more.
Passionate about Parenting
The dates for the 2018 Challenging Behaviours Support Group for Parents and Carers in Penzance are now available. These free support groups are aimed at parents and carers who are finding their child’s behaviour difficult to manage. Please use the link below to find out more.
Challenging behaviours Support Group
FREE Parenting Programme January to March 2018
Also, there is a new series of Oasis group sessions, provided by Scope, specifically to support parents of children with SEND. Please see dates on whole school dojo message, or on the school noticeboard.
Your Child’s Health
These booklets are developed each year to ensure any national or local changes to the National Child Measurement Programme (NCMP) are reflected and communicated clearly to parents. This booklet contains details about what to expect when your child participates in the health checks in YR and Y6.
The process for opting children out of the health checks has been clarified by placing this form on the front page. Please remember; if a parent/carer does not return the opt out form your child will be included in all of the health checks, including the NCMP.
Your child’s health YR
Your child’s health Y6
Camborne Wesley Methodist Church to offer all parents the opportunity to 4 week parenting courses being run at the church throughout the year. Parents are invited to the first session as a ‘taster’ with no obligation to come back again. There are 4 courses planned through the year: The next opportunity is running on consecutive weeks from Monday 15th January to Monday 5th February from 19:00-20:30.
Parenting courses are a great opportunity for parents to take time out to consider their parenting skills, learn new ones and share their experiences with one another.
The sessions are all DVD and discussion based and cover topics such as “We’re not alone”, “Disciplining with Flexibility”, “Showing you care” and “Communicating with your child”. Parents can book on the course by ringing James Preston (see below)
Details are available in the office or From Mrs Lobban
Infection control and winter readiness
Cornwall Council has been working with Public Health England and other partners to produce an infection control and winter readiness pack to support schools and nurseries this winter. The information below may be of use to you. Fingers crossed for a healthy and absence from school free winter season! It might be useful or helpful to share these with your work places too.
Hand hygiene poster
“Catch it, Bin it, Kill it” poster
“Stop norovirus spreading this winter” leaflet
Norovirus guidance for 2017/18
The Pearl Centre
If you have a child with autism, or on the spectrum, or if you know a family with a child with autism, please share this latest news from the Pearl Centre.
As you may know, our open sessions which we hold every month at the Pearl Centre are very popular and are often oversubscribed. We understand that at times it is hard to organise things to attend and last minute things happen resulting in you not being able to make it.
Could we please kindly ask that if you have booked or do book in the future and for some reason, you can not make it that you let us know as soon as possible so that others may attend in your place. This would be really helpful to us, ensuring those that want to come can but also helps ensure we are not running open sessions with only 4 people when potentially 10-12 could attend.
Our free Open Sessions are held once a month.
They provide an opportunity for interested people to put their questions to our clinical psychologist and a behavioural expert. It’s a great opportunity to put the professionals in the hot seat, ask questions relevant to your situation or learn more about Autism.
These sessions have proven to be very helpful in helping with questions you may have, signposting and information giving. They also provide a place to meet others in similar situations.
Our next open session is on November 14th at 1pm This session currently is fully booked.
The next session after this one will be in January. We have not yet confirmed the date but as soon as we do we will send the dates out.
Many thanks for your support
Pearl Centre Manager
If you would like more information, please use the website link www.spectrumasd.org or email Gavin using this email address:email@example.com or phone 01872 278378
If you have a child aged 2 or 3, get them vaccinated against flu with the free nasal spray flu vaccine from your GP. School children from reception class through to year 4 will get their vaccinations through their school.
Below are links to useful leaflets with information that might support your decision making with regards to these vaccinations:
Useful sites for families and carers of children with SEND
Legal Resources for Special Needs
Keeping Disabled Persons Safe While Remodeling
Creating a Home Where Your Disabled Child can Thrive
Teacher Resources for Special Needs
Disaster Preparedness for Special Needs
Disability and Credit Scores
Disability Resources from the Department of Labor
Tips for Disabled Persons to Declutter and Organize their Home
Financial Planning for Special Needs
Free Sleep Workshops
Does your child find it difficult to sleep? Do you find it challenging supporting your child to settle to a good night’s sleep?
SCOPE are running two FREE workshops to support children and parents with sleep difficulties. One in Truro on 19th October and one in Penzance on 10th October.
If you feel this would be of help to you and your family please use the contact details below. BOOKING IS ESSENTIAL
tel: 07767 111 867 or 01872 302 411
The Council for disabled children
A practical guide to supporting young people with special educational needs and disabilities to make their own decisions and to be engaged in the best interests decision making process. The Council for Disabled Children have designed this toolkit to enable professionals and parents to support young people with SEND in
- making their own decisions and
participating as fully as possible in decisions made on their behalf in line with the requirements of the Mental Capacity Act 2005
Carers week: 12 – 18 June 2017
Carers Week is an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities throughout the UK.
The campaign is brought to life by thousands of individuals and organisations who come together to organise activities and events throughout the UK, drawing attention to just how important caring is.
For further information visit: www.carersweek.org
The following activities are taking place throughout the week:
Mental health Awareness week: 8 – 14 May 2017
This year’s Mental Health Awareness Week is flipping the focus away from mental ill-health to exploring how we can cultivate good mental health using the theme ‘Surviving or Thriving?’
During the week of 8-14 May, the Mental Health Foundation will be producing a new report to highlight the numbers of us who feel stuck on ‘survive’. They will be providing advice and insight into how we can build good mental health in the context of our work, our digital world, our parenting approach and in our communities.
You can learn more about Mental Health by following the work using the the following links:
Mental Health Foundation,
Time to Change
If you have concerns for your children linked to mental health, please contact Mrs Lobban.
Foster care fortnight: 8 – 21 May 2017
Foster Care Fortnight is the UK’s biggest foster care awareness raising campaign, delivered by leading fostering charity, The Fostering Network. It’s main aim is to recruit foster carers but it is also a great platform to showcase and share knowledge about the difference that foster care and quality support and education makes to the lives of fostered children and young people.
If you would like to know more about the fostering service, or what it would involve to be a foster carer, please use the links below.
The Fostering network
We have a member of staff who is an experienced foster carer. Please contact Mrs Lobban if you would like to arrange a meeting with this member of staff regardng any aspect of foster care.
Support for parents of pupils with SEND
Scope is a charity that actively supports parents and families of children with SEND. There are support networks locally, in addition to other services. These services are FREE and confidential, and include a befriender service, Face2face support among others. Please use the links below to see how this service may be of support to you and your family.
SCOPE – home page
Scope – parents supporting parents Scope
Scope – parents supporting parents Scope.dates
Parenting Courses 2017
Please see if there is support suitable for the age of your child. Additional information can be found using the links. These are FREE!
0 – 12 months – Redruth Start date Friday 2nd June Incredible years 0 – 12
1 – 3 years – Gooseberry Bush Start date Tuesday 25th April Incredible years 1 – 3
3 – 6 years – Pool Start date Wednesday 26th April Incredible years 3 – 6
6 – 12 years – Camborne Start date Monday 24th April Incredible years 6 – 12
Supporting parents of children with ASD (autistic spectrum disorder) Start date Thursday 8th April Time out from ASD
Eating Difficulties Wednesday 10th May Eating difficulties – children and young people
Keeping our families and children healthy!
Change 4 Life has now rebranded as Food SMART. The revised and updated website has lots of information about how to make manageable and positive lifestyle changes to support the health and well-being of you and your family. There is also a free app, with on the go info…. enjoy!
Be Food Smart
On 15 December the Secretary of State for Health, Jeremy Hunt, launched a new sepsis awareness campaign, supported by UK Sepsis Trust, to raise awareness of the key symptoms of sepsis amongst parents of children aged 0-4.
Acting quickly could save a child’s life. The campaign encourages parents of children aged 0-4 to go to A&E immediately or call 999 if they have any of the following symptoms:
- Looks mottled, bluish or pale
- Is very lethargic or difficult to wake
- Feels abnormally cold to touch
- Is breathing very fast
- Has a rash that does not fade when you press it
- Has a fit or convulsion
The campaign will be launched with a series of new videos explaining the key symptoms, fronted by campaigner Melissa Mead, and a number of other families affected by the condition, as well as the release of posters and leaflets below to help raise awareness.
Sepsis information leaflet
For more information visit www.nhs.uk/sepsis or sepsistrust.org.
Cerebra is a charity to support parents and their children with sleep difficulties. If you are experiencing sleep difficulties with your child, use these links below. We all need a good night’s sleep, parents as well as children!
Guides to parents
Help in your area
SCOPE are offering sleep workshops in our area, for parents of pupils with sleep difficulties. Please access the leaflet using the links below for more information.
Sleep Workshop – Truro – Feb 2017
Sleep Workshop – Weeth Primary School – Jan 2017
For more information about Sleep Solutions and Scope, follow the link below:
Scope – Sleep solutions
School Immunisation Programme
All pupils in Y1, Y2 and Y3 have received their information leaflet explaining about the School Immunisation Porgramme in Cornwall this year. For more information please use the link below:
Kernow Health: School Immunisation Programme
NHS Kernow: parents encouraged to immunise children against flu
Cornwall’s Special Educational Needs and Disability Information Advice and Support Service (SENDIASS)
Disability Cornwall has secured the contract for the Cornwall and the Isles of Scilly SENDIASS for the next three years. This service is independent of the Local Authority and is available to children and young people with SEND, their families and the professionals that work with them.
SENDIASS provides information, advice and support for any child or young person aged 0-25 with a special educational need or disability and their parents and families. Their service is confidential, impartial, accessible and free.
They can assist with:
- Understanding the Local Offer, personal budgets, the law on SEN and disability, health and social care
- Advice on SEN support, Education, Health and Care plans and can refer parents to one of our Independent Supporters
- Preparation for meetings and when relevant attend meetings with parents, children and young people
- Resolving disagreements, including mediation and tribunal support
- Offering confidential information and advice to children young people around SEN issues
- Linking parents/ carers and young people with local support groups and forums.
Contact SENDIASS’s friendly and professional team by:
SEND 0 to 25 – Knowing where we are, moving forward together
Different people and groups have a range of experiences and views about what it means to live in Cornwall and have special educational needs and / or disability (SEND), to have a family member with SEND or to work with children and young people with SEND.
Together we can draw together a shared understanding of SEND in Cornwall and have a clear view of what needs to happen next.
Every part of the country has to have a Joint Strategic Needs Assessment (JSNA), evidence about what life is like. Cornwall Council wants to share this, and some broader SEND information, with a wide range of people so we can identify what is important to keep the same or to change in the future.
How can you take part?
Watch out for details about on line information when you will be able to say what your experience is like and identify what is important to you. The online survey will be live from 9 November to 9 December 2016.
Prefer discussing face to face?
Meetings have been arranged where there will be a presentation and opportunities for discussion and feedback. These are informal and open to everyone who has an interest in SEND.
- Wednesday, 9 November 2016- The Pavilion, Royal Cornwall Showground, Wadebridge
- Wednesday, 23 November 2016- The Lecture Theatre, Penwith College, St Clare, Penzance
- Friday, 25 November 2016 -The Health and Wellbeing Innovation Centre, RCH Treliske, Truro (If possible, please use the Langarth Park and Ride which is located on the west side of Truro on the A390 at Threemilestone for an easier cheaper car parking option. The postcode is TR4 9AN)
All events will be 10.00 am – 12.00 noon
National Child Measurement Programme 2016.17
Pupils in Reception and Y6 are measured in schools every year. School will contact all parents with information about this. Please use the link below for further information.
NCMP Information for Parents
You may be aware that measles is circulating in many areas across the country; there continues to be cases in many parts of the South West. Transmission is occurring most in areas with a lower uptake of MMR vaccine; in particular parts of Devon, Somerset and Dorset. The majority of cases are of secondary school age but people of all ages are being affected. Following an outbreak in South Devon in the summer we continue to see the majority of our cases in Devon.
Measles is a highly infectious viral illness spread through coughing and sneezing and close personal contact. Most people feel very unwell but do recover completely from measles, however, on rare occasions there can be serious complications.
The first stage of measles includes a runny nose, conjunctivitis (red eyes), a cough and an increasing fever that comes and goes. A rash appears on day 3 or 4 while the individual is still feverish and miserable.
Anyone with suspected measles should be excluded from school or work until five days after the rash first appears.
MMR vaccine offers a high level of protection against measles. The first dose should be given at 12 months of age and the second with the pre-school booster, but if these have been missed it is never too late to have them. Two doses are required to provide a high level of protection. This is important for the protection of the individual and also to protect those who cannot be immunised because of age, pregnancy or an underling medical condition causing immunosuppression. For these vulnerable people, measles can be a particularly serious disease.
If you are unsure whether your child/children have been fully immunised, you can check with your GP surgery and make an appointment to receive any doses of MMR vaccine they may have missed to ensure they have the 2 doses to provide protection against measles and also rubella and mumps.
MMR is also beneficial if given within 72 hours of exposure to the virus.
If your children do have signs or symptoms of measles, please contact your GP to seek medical advice. Please telephone the GP surgery before visiting and tell the receptionist that the person may have measles so that the surgery can ensure that arrangements are made to avoid exposing other patients to a potential infection.
Please note that scarlet fever is circulating in the community. This is to be expected in spring and early summer.
Signs and symptoms
Scarlet fever is a common childhood infection caused by the bacteria Streptococcus pyogenes, or group A streptococcus (GAS). The early symptoms of scarlet fever include sore throat, headache, fever, nausea and vomiting. After 12 to 48 hours the characteristic red, pinhead rash develops, typically first appearing on the chest and stomach, then rapidly spreading to other parts of the body. If you have any concerns about your child, please seek medical advice from your GP. In the case of scarlet fever, children will be prescribed a course of antibiotics, for approximately 10 days.
Infection control advice
Infections can be spread through mucus secretions, aerosols and through shared contact with contaminated surfaces such as table tops, taps, toys and door handles. As per national Guidance on Infection Control in Schools and other Child Care Settings, children and adults with suspected scarlet fever will be excluded from school. They may return if they are feeling better but only 24 hours after commencement of antibiotics. The antibiotic course for scarlet fever is 10 days and it is important that the full course of antibiotics is completed, even if the patient has started to feel better. In addition to exclusion, good hygiene practice such as hand washing remains the most important step in preventing and controlling spread of infection.
Advice received from:
Dr Sarah Harrison Dr Caroline Court
Deputy Director of Interim Director of Public Health
Health Protection Educuation, Health and Social Care
Flu is circulating the community. One of the circulating flu strains at present is H1N1, previously known as swine flu. As this strain is now not a pandemic strain, it should be treated like any other circulating flu strain as outlined below.
Infection control advice
Simple hygiene kills germs
• Hand washing is essential. It is really important to encourage your children to do this.
• It is best to use warm soapy water and encourage a thorough handwashing technique.
Further information about germs and hand washing is available at:http://www.e-bug.eu/. It contains games and other information to help children learn how to prevent the spread of germs.
When can a child return to school?
When a child is free of the symptoms of a flu-like illness they can return to school. This is usually about one week after the symptoms start. We understand that this can be difficult for parents with work commitments and childcare to manage. However, this will help us to reduce transmission of the infection.
Information received from:
Dr Sarah Harrison Dr Caroline Court
Deputy Director of Interim Director of Public Health
Health Protection Educuation, Health and Social Care